Conversations of a Lifetime

Things You Shouldn't Wait To Say - A grassroots campaign to engage the community in starting advanced care planning conversations.

Start The Conversation - Click here for answers to basic questions, some great tips and and easy starter kit.

Resources for Taking Action - You'll find more valuable information here, as well as important forms to print out.

Questions? Contact Us

Info for Providers
Coding for Advance Care Planning
 
Trajectory of Illness
 
Articles

Falling Together - Empathetic Care for the Dying  Lisa Rosenbaum, M.D. The New England Journal of Medicine 374.6 (2013): 587-590.

How Doctors Die  Ken Murray. Nexus (2011). It’s not a frequent topic of discussion, but doctors die, too. And they don’t die like the rest of us. What’s unusual about them is not how much treatment they get compared to most Americans, but how little.

Communication About Serious Illness Care Goals: A Review and Synthesis of Best Practices  Rachelle E. Bernacki, MD, MS; Susan D. Block, MD. JAMA Internal Medicine (2014).  This article reviews the evidence and describes best practices in conversations about serious illness care goals and offers practical advice about developing a systematic approach to quality timing of communication to assure a personalized serious illness care plan.

Dying in America: Improving Quality and Honoring Individual Preferences Near the End of Life  Institute of Medicine (2014).  For the millions of Americans who work in or with the health care sector, providing high-quality care for people who are nearing the end of life is a matter of professional commitment and responsibility. Providers have a responsibility to ensure that end-of-life care is compassionate, affordable, sustainable, and of the best quality possible. A substantial body of evidence shows that broad improvements to end-of-life care are within reach. Dying in America finds that improving the quality and availability of medical and social services for patients and their families could not only enhance quality of life through the end of life, but may also contribute to a more sustainable care system.

Approaching Patients and Family Members Who Hope for a Miracle  Widera, E, Rosenfeld, K., Fromme, K., Sulmasy, D., Arnold, R. Journal of Pain and Symptom Management 42.1 (2011): 119-25.

Strategic Targeting of Advance Care Planning Interventions: The Goldilocks Phenomenon  Billings J, Bernacki R.AMA Intern Med. (2014); 174(4):620-624.

Living Well at the End of Life: Adapting Health Care to Serious Chronic Illness in Old Age  Lynne, J., Adamson, D.Rand Health White Paper WP-137 (2003).

Discussing Religious and Spiritual Issues at the End of Life: A Practical Guide for Physicians  Lo, B., Ruston, D., Kates, L., et. al. JAMA: The Journal of the American Medical Association 287.6 (2002): 749-54.

Websites
 
Books
   
Education and Resources
 
Advance Directive by State
 

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